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Cancer Resources

American Brain Tumor Association
www.abta.org/
Provides publications about brain tumors, support groups, as well as referral information. Helps to fund brain cancer research.

American Cancer Society
www.cancer.org/
Offers numerous resources including printed materials, counseling for patients and their parents, and information on lodging for people who may require treatment far from home. (1-800-ACS-2347)

American College of Surgeons
The American College of Surgeons "Patients as Partners in Surgical Care” site contains educational information to help you and your family become informed about your operation and surgical care.

American Society of Clinical Oncology
www.asco.org/

Blood and Marrow Transplant Clinical Trials Network (BMT-CTN)

https://web.emmes.com/study/bmt2/

The Blood and Marrow Transplant Clinical Trials Network (BMT CTN) was established in October 2001 to conduct large multi-institutional clinical trials.  The trials will address important issues in hematopoietic stem cell transplantation (HSCT), thereby furthering understanding of the best possible treatment approaches.  Participating BMT CTN investigators collaborate through an organization designed to maintain continuity of operations, to facilitate effective communication and cooperation among participating transplant centers and with collaborators at the National Institutes of Health, and to offer trials participation to patients in all regions of the U.S.

BMT Newsletter
www.bmtnews.org/
All issues of the newsletter are online; the book,Bone Marrow Transplants: A Book of Basics for Patients,as well as an extensive list of resources is also online.

Brain Tumor Society
www.tbts.org
Makes available basic information about brain tumors, as well as resources for patients and families. Also seeks to answer frequently asked questions. Offers services for healthcare professionals.

Cancer Care
www.cancercare.org/
A non-profit organization committed to helping people with cancer and their families. It provides a variety of services including counseling, education, referrals, publications and financial assistance.

Cancer Hope Network
www.cancerhopenetwork.org/
Support group for those undergoing chemotherapy and radiation therapy. Trained survivors offer one-on-one counseling.

Cancer Information Network
www.cancernetwork.com/
Comprehensive Web site for cancer patients and their caregivers. News about cancer updated daily; instant access to treatment guidelines, medical databases, and general information about all kinds of cancer.

Cancer Source Kids
www.cancersourcekids.com/
If you have a son or daughter with cancer, you probably have questions about how they got cancer, the treatment, what hospital stays are like, recovery and much, much more. You will find the answers to many of your questions.

Cancer Survivors Online
www.cancersurviors.org/

Candlelighters Childhood Cancer Foundation
www.candelighters.org/

Children's Oncology Group

The Children's Oncology Group provides key information to help support children and their families from the time of diagnosis, through treatment and following cure. Explore ways the COG can help. Download the COG Family Handbook.

Center for International Blood & Marrow Transplant Research (CIBMTR)

CIBMTR collaborates with the global scientific community to advance hematopoietic cell transplantation and cellular therapy research worldwide. A combined research program of the National Marrow Donor Program* and the Medical College of Wisconsin, CIBMTR facilitates critical research that has led to increased survival and an enriched quality of life for thousands of patients. Our prospective and observational research is accomplished through scientific and statistical expertise, a large network of transplant centers and a clinical database of 350,000 transplant recipients. 

Histiocytosis Association of America
www.histio.org/
The goals of this organization include public and professional education, patient and family support, and stimulation and support of research.

Leukemia Research Foundation
www.leukemia-research.org
Helps to fund research through 18 local chapters, seeks to enrich the quality of life of those touched by the disease. Offers links to support groups and helps arrange financial aid for patients.

Leukemia Society of America
www.leukemia.org/
Among various services offered: financial assistance, transportation to treatment centers, blood transfusions.

Leukemia & Lymphoma Society
www.leukemia-lymphoma.org/

Locks of Love
www.locksoflove.org/
A non-profit organization that provides hairpieces to financially disadvantaged children under the age of 18 suffering from long-term hair loss.

National Brain Tumor Foundation
www.braintumor.org/
Provides patients and families with information they need to cope with their illness. Sponsors seminars and support groups; helps to fund research for more effective treatments.

National Cancer Institute
www.cancernet.nci.nih.gov/
www.cancertrials.nci.nih.gov/
Provides information on prevention, detection, treatment, statistics, coping and clinical trials. In addition, summaries of NHI fact sheets and publications, clinical trial abstracts and a Cancer Genetics Services Directory of professionals are also available. (1-800-422-6237)

National Cancer Services
www.icicc.nci.nih.gov/
www.nccf.org/
International cancer information center and National Childhood Cancer Foundation.

National Childhood Cancer Foundation (NCCF)
www.nccf.org/
Supports pediatric cancer treatment and research projects throughout the United States, Canada and Australia. Supports cooperative laboratory and clinical research designed to improve treatment.

National Children's Cancer Society, Inc.
www.children-cancer.org/
The mission of the National Children's Cancer Society is to improve the quality of life for children with cancer and to reduce the risk of cancer by promoting children's health through financial and in-kind assistance, advocacy, support services, education and prevention programs.

National Institutes of Health (NIH)
www.cancernet.sci.nih.gov/
http://www.cancer.gov/cancertopics/coping/life-after-treatment      
Web page for survivors.

National Marrow Donor Program
www.marrow.org/
The program maintains a registry of bone marrow donors, provides information on how to become a donor, and helps to organize donor-recruitment drives.

Neuroblastoma Children's Cancer Society
www.neuroblastomacancer.org/
Provides information on neuroblastoma for families of children diagnosed with this form of cancer.

Oncolink
www.oncolink.com/
Site contains many useful links.

Outlook
www.outlook-life.org/
A Web site for survivors of childhood cancer

Pediatric Blood Marrow Transplant Consortium (PBMTC)

The Pediatric Blood and Marrow Transplant Consortium (PBMTC) is comprised of a voluntary group of clinicians and scientists engaged in the area of Hematopoietic Stem Cell Transplantation. The purpose of the PBMTC is to engage in scientific and educational activities related to the use of hematopoietic stem cells in the treatment of diseases of children and adolescents.

Resources for Childhood Cancer Survivors

Once treatment has ended, childhood cancer survivors may continue to experience chronic issues throughout their lives. Understanding the challenges they may face is critical for the future health and well-being of survivors.

The following resources provide information to help survivors better understand and manage their long-term health needs.

CureSearch

CureSearch is one of the leading Internet resources for current and former childhood cancer patients and their families. There is extensive information about that issues affecting childhood cancer survivors based on their specific disease.

National Cancer Institute

 The National Cancer Institute is the US government's primary organization dedicated to cancer research and a source for extensive information related to cancer and survivorship issues. 

Oncofertility Consortium

The Oncofertility Consortium began at Northwestern University. Their website provides extensive information related to fertility issues in current and former cancer patients.

Teens Living with Cancer (TLC)
www.teenslivingwithcancer.com/
The official Web partner of COG and its Adolescent and Young Adult program. The Melissa Living Legacy Foundation and COG sponsor this site as a memorial to Melissa Sengbusch, who died of AML at age 19, after two years of intensive therapy. The site has an interactive section for teens with cancer and is replete with facts and practical advice for patients and family members.


 

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