The Heart Center Patient Family Advisory Council (PFAC)
The Heart Center at Children's Hospital has its own Patient Family Advisory
Council. The PFAC consists of 14 Heart Center parents that meet on a quarterly
basis to discuss ideas, ways to improve and to give general input and
feedback to Children's Hospital and Heart Center leadership. The PFAC
acts as a representative council for all Heart Center families. More information
can be obtained by emailing at
HeartCenterPFAC@lcmchealth.org
Cardiology Outcomes and Research Team (CORT)
The Cardiology Outcomes and Research Team (CORT) facilitates the research
endeavors of the Heart Center and Children’s Hospital New Orleans.
Research is an important component of advancing the field of pediatric
cardiovascular medicine and improving the care of babies, children, and
even adults born with heart disease. The Heart Center has many clinical
research studies which focus on cardiology care. Families being cared
for by the Heart Center may wish to learn about and potentially participate
in these studies. Interested families should contact
Marla Johnston.
Conquering Congenital Heart Disease
The Louisiana Chapter of
Conquering Congenital Heart Disease provides knowledge, gives a voice and hope, directly meeting the comprehensive,
lifelong needs of patients with congenital heart disease (CHD) and their
families. Their work includes providing Conquering CHD Kits which offer
critical information and personal connection for patients with CHD, online
chat networks, in-person peer support, social events, research promotion
and advocacy activities.
